Wednesday, August 20, 2008

Not doing too well

Okay, so I lied in the last post. Here's a quick update. Yesterday joseph continued to grow weaker and since we were in the car most of the time we didn't really notice it that much. Early in the morning he woke up with a severe headache and vomited. Then all day today he was unable to stand or even sit up. He seems to not be able to move his right side of his body. He did great at St. Jude but that's probably due to just being weak; he wasn't able to give his usual effort in fighting the needle. He only had a PET scan today and they couldn't really tell us anything about what's going on. The MRI tomorrow will tell more, but we kind of know what's going on based on his symptoms. Hopefully after the MRI, we'll be able to start Avastin on Thursday and Friday and then come home.

He is very frustrated and down about not being able to move. Pretty much the only thing that is keeping him somewhat happy is that tomorrow is his birthday and we have told him about the many presents waiting for him. Other than the headaches, he isn't in any pain; but we can't give him any medicine to help him understand what's happening or make it easier. Obviously, we are also pretty depressed about his quick deterioration as well.

We'll try to update again tomorrow after the MRI. Please keep praying for him.

74 comments:

Anonymous said...

Thinking of you a lot!
Suzanne

Ashley said...

Praying right now and hoping that Joseph has a much happier day today.

trmills said...

Praying, friends.

lauramatthews said...

thinking of and praying for you all.

Sarah-Jane said...

love you all
HAPPY BIRTHDAY JOE P
hope there will be a ray of hope today.
asking God for strength to endure.

Jody (atlanta) said...

Happy Birthday beautiful boy! Praying big time and loving you ALL.

Gill/Allen - thanks for updating us...in the midst of all your going through you take the time to update blog which we so appreciate since we all praying and thinking constantly of your amazing boy and your family.

Love, Jody

Anonymous said...

praying for a birthday miracle love, martha and karl

Anonymous said...

praying for a birthday miracle love, martha and karl

Anonymous said...

praying for a birthday miracle love, martha and karl

Lynn T said...

Happy Birthday sweet Joe P. We love you so much.
Gill and Allen, thanks so much for updating us..praying too for a Birthday miracle

Anonymous said...

Happy Birthday Joseph! We too are praying for a birthday miracle. Our hearts are with you.
love, vann & norma

Anonymous said...

Praying hard..... Happy Birthday Joseph, I hope you have a happy day and get lots of presents:)

Margaret said...

Happy Birthday Joseph! We'll be looking for some pictures of Joseph surrounded by loads of presents and gift wrap and that special JoeP Sparkle in his eye!
Love, Margaret

PS I don't even have to identify the crazy letters anymore before my post goes up. I think I have posted THAT much. I think that makes me your official blog stalker!

nana said...

Happy birthday to you happy birthday to you Happy birthday dear Joseph Happy birthday to you!!We love you sooo much.You are the bravest boy in the world and you are four years old to-day.Praying for some ray of hope and praying for some smiles.we love you lightening ..Love from Nana

Anonymous said...

I am praying for your family as you go thru these hard days. I found your blog from another persons blog and have prayed for Joseph and your family since then. Happy Birthday Joseph.
Karyn

juliette said...

Happy Birthday Joseph!!!!!!
We love you.
J.R. Juliette and Jackson

Heinzfeet said...

Grieving and praying with you...our hearts just ache, but we too pray for a miracle today.

Anonymous said...

It hurts my heart to hear the update. Praying for a birthday miracle as well. happy birthday Joseph.

paige

Praying for Cros said...

we have been praying & will continue to lift up Joseph & your dear family....
hugs & happy bday greetings : )

Anonymous said...

Happy Birthday to you, to Jesus be true, may God's richest blessings, be always with you.
Happy Birthday, Joe P. Mimi loves you. Have a wonderful birthday.
Love, Mimi

Carrigan Family said...

Praying this morning ..... asking for His grace and mercy to flow and for a really, really good day for this birthday day. Happy Birthday Joseph - you enjoy all of those presents!!

suzanne morris said...

Praying for something to smile about today. Happy Birthday Joe P!
We love all of you.

Mel said...

Praying for God's comfort to surround you on all sides and for a sweet birthday celebration. We send our love, Mel & family

carolyn & dave said...

Happy Birthday Joe P.! Praying, praying, and praying some more.

He will cover you with his feathers, and under his wings you will find refuge; his faithfulness will be your shield and rampart. Ps 91:4

Love you guys!

Carolyn & Dave

Heidi said...

Happy Birthday Joseph! I'm praying that you have a wonderful birthday! :)

About Janice said...

Praying for you all.

Anonymous said...

Happy Birthday to Joseph. Praying for a better day for you guys today.

Catherine Morris

Anonymous said...

Happy Birthday Joseph,
Hope you have a happy day with lots of smiles and a birthday miracle.love ann ben & the boys

Sam said...

Happy birthday Joe Turbo! Eat as many cookies as you can, and don't worry about leaving any for me! I am praying for you today... May God bless you with every spiritual blessing.

-Uncle Sam

Anonymous said...

Happy Birthday sweet Joseph. We are all praying in agreement for a healing miracle for Precious Joseph.

And I am praying for all of you today that God will be so near to you and give you comfort and peace.
Love always
Ann Lewis

Ashley said...

I already posted a comment this morning, but a song has been on my mind a lot and I think of y'all everytime I sing it. It was one of my favorite songs we sang in chapel at Lipscomb and it gave me such a peaceful feeling:

I sing a simple song of love
To my Savior, to my Jesus
I'm grateful for the things You've done
My loving Savior, oh precious Jesus
My heart is glad that You've called me Your own
And there's no place I'd rather be
Than in Your arms of love
Your arms of love, holding me still
Holding me near, in Your arms of love

Just praying that you will all be held near to Jesus in His arms of love.

Siobhan said...

Happy Birthday Joe - hoping all the presents bring big smiles and lots of laughter.

Thinking of you all this week

Siobhan
x

Anonymous said...

Happy Birthday, dear Joseph! I am praying for you and hope you have a wonderful birthday.
I've kept up with the blog for months and check it every day. I am a friend of Allison O'Steen's and have all of my friends up here in NYC praying for you!
You have touched my heart and I will continue to lift you up to the Lord.
Love,
Carrie

katie lazas said...

PRAYING!!!!!!!

happy birthday Joseph!

Kit said...

I've never commented before, but I heard about your sweet Joseph from some friends here in Boston. I just wanted to say that I am praying for him and for you.

Meg said...

Praying for some good news soon for you guys! Happy Birthday Joseph!

Chloe said...

HAPPY BIRTHDAY LIGHTNING MCQUEEN.
LOTS OF LOVE FROM DUBLIN

JAMES, INGRID, AND THE CLAN.
XXXXXXXXXX OOOOOOOOOOOOOOO

read2kds said...

Praying for you and your sweet boy.

Joe said...

Been keeping your son in our thoughts / prayers and lite a candle to St. Jude for him today in New York's Saint Patrick's.

randibisme said...

Praying and loving you all.
I hope tomorrow is a wonderful birthday for Joseph. My heart is with you all.
Randi and the boys

randibisme said...

Happy Birthday wonderful Joseph!!!
The Booth family loves you dearly!
Nate and Tony Booth

Anita J. said...

Praying for Joseph today.

Ami said...

I am so sorry to hear that sweet Joseph is not doing well. I have been reading your blog for quite some time now and I cannot express how much I admire you all. I know this has to be such a heartbreaking situation and yet you all are so strong and positive.

I am praying for you all and hope the Joseph has a wonderful birthday and that God comes through with a miracle for him.

Wright Family said...

I was just praying for y'all and thought I'd check on your blog. I am so sorry that things have gotten so much worse so quickly. We are praying so much for all of you and will pray for a very special joy-filled birthday for sweet Joseph.
Nathaniel and Rebekah & girls

Christina Joy said...

Mark 11:22-24
Isaiah 41:10

Thinking of your family at this time and lifting you up in prayer.

Kate Etue said...

praying

Christy said...

Happy birthday sweet Joseph. We all wish we could celebrate with you in person. I think my favorite memory of all your fun parties is your cowboy birthday when Jennifer (I think it was Jennifer) drew a mustache and beard on one of your pictures. Brilliant. I sure hope you feel a whole lot better soon to enjoy all your loot.

Anonymous said...

I read about your sweet family on another blog and am praying for you in Atlanta. Though we've never met, my heart really aches for you.
Jen Adams

Reed's mom said...

praying for you all, and that sweet little man....love the willis family

notes from em said...

our hearts are aching for you all. may you have a joy-filled birthday tomorrow. we are praying constantly.
love
Drew, Em and the girls.

Anonymous said...

happy birthday to joseph!!!!

praying for all of you all of the time,

erin, dave & quinn

Michael and Jana said...

Praying and hoping.

Merritt said...

yes, we will pray. thinking of all of you often, merritt

Annabanana said...

Happy Birthday, dear Joseph! and prayers for you and your family. Hope there's some good surprises in those presents!

Anonymous said...

Praying guys. -scott cunningham

Dave said...

Happy Birthday Joe P. I hope you enjoy the love (and presents) of your family and friends today. We are praying for you all.

Dave, Erin, and Quinn.

Craig and Gwen said...

Happy Birthday!

I remember that 1st bday party with the cowboy theme - Gill was pregnant and looked sooo tiny at that party.

Praying for you JoeP and wishing you a very happy birthday!

Sara Wade said...

Oh, we're definetely praying for you guys and that Joe may have a very, very happy birthday.

Love,
sara

Anonymous said...

our hearts are hurting for you sweet family. we're thinking of you and praying for precious little joe.
much love,
the mccurdys

Anna Tester said...

xxxooo! Happy Birthday sweet boy. We all love you and are sending birthday love.

Lauren Klein said...

Awe, I'm so glad Joseph has his birthday to look forward to and help keep his spirits up :)
I'm trying to focus on the positive.

Kathleen said...

Please tell Joseph when I walked down to the bayou this morning to drink my coffee it was a little rainy. The alligators asked me why I looked sad and I told them that I know a little boy named Joseph who wasn't feeling so good and today is his birthday. They told me they would sing Happy Birthday to him all day. When they started to sing it was very silly because they had bubbles in their mouth and sometimes it would sound like Bloopy Bloopday to Joseph. The bigger alligators had bigger bubbles in their mouth and they were singing Happy BirthGlug to Joseph Glug. I just got home from work and I can hear a lot of Glugs and Bloops coming from down there so I know they are still singing Happy Birthday to Joseph.

I hope you smile today.

kelly robinson said...

Praying and pleading on your behalf. Will fast for Joseph all day tomorrow...may God grant him a great day and a birthday miracle. Please Jesus.

Anonymous said...

Happy Birthday little Joseph!! Praying for you and your family, sending good thoughts and many many continous prayers for complete healing and strength for mommy and daddy!

Pomeroy Kinsey said...
This comment has been removed by the author.
Anonymous said...

happy birthday joseph. I hope you get better.

love

miles cunningham.

Anonymous said...

Not enough words to describe how heartbroken we are for you as you experience these moments.
Praying, praying, praying.

Anonymous said...

Happy Birthday Joe P.!!! I am praying for you and hoping you feel better!! You guys are always in my heart and on my mind!! PRAYING!!!

Love,
Orlagh

katy said...

Praying for you all in the next few days -- that Joe will not be in pain, and that you will each be granted a peace that passes understanding.

Denise said...

Will be praying hard for Joseph and your family.

carriehayes said...

i am praying so hard!

Emily said...

We are praying for you all! Praying God's peace, strength, and Mighty Healing Hand!
Eric and Emily Porter

The Morreys (Erin) said...

Happy birthday Joseph! We are thinking of and praying for you everyday.

Anonymous said...

Praying with tears for this child
and for you guys as well that the
Grace of Christ would strengthen
you and sweet Joseph during this
time.