Well, we are all moved in to Aunt Jennifer and Uncle Matt's house. We are so thankful for the huge sacrifice they have made to let us stay in their cozy house. Holly has extra friends in their two dogs, who are the best dogs I know of. They are so content and rarely bark at all, which is good for a household that needs sleep. :) Holly wakes up and immediately wants to play with the dogs or go outside to play with them when they are outside, which is not much since it is frigid here in Memphis.
We came home from the hospital on New Year's Eve day, but Allen ended up taking Joseph back to the hospital that very night since he threw up five times that evening. He ended up being fine; we think it was due to taking his medicine on an empty stomach. But poor Allen didn't sleep much that night, and Joseph had to be admitted again and sleep back in the hospital. But he handled going back there surprisingly well. It is amazing to see his sweet accepting spirit in all the pain he is enduring. It is encouraging but also a little heart-breaking to see him get used to his condition.
But, his condition is definitely much better than after the previous surgery. He is much more enthusiastic about playing, listening to stories told by Nana (or should I say Guido?) We have all adopted Car Movie names--Joseph is Lighning, I am Sally, Allen is Sheriff and little Holly is Mack (appointed by Joe P.). I think he has gotten really tired of TV b/c he never wants it on and now wants stories all the time. It is stretching our imagination a bit, but that is a good thing. He also seems to be a lot more comfortable and doesn't want to be lying down all the time. A major highlight so far was seeing him riding around the house on his new Thomas the Train riding toy last night. His balance also seems a lot better--not perfect, but much better than before this surgery. His legs need some strengthening, so hopefully continued activity and physical therapy will help that.
Tomorrow we have a day full of appointments at St. Jude's. Our first few days there a couple of weeks ago were pretty hard on Joe. He just wanted to lie down in the wagon and woulnd't talk or participate in any of the "tests" (hearing, physical therapy, etc.). Please, please pray that he would be calm tomorrow and God would just enable him to not be scared and get through all the appointments with mimimal screaming and crying, etc. He is not allowed to eat all morning due to sedation so that should be an added trial to his good mood. So, obviously we need a lot of supernatural strength tomorrow, as we do every day. It was so encouraging to see all of our prayers answered with "yes" after the last surgery. God has been so good and faithful to meet all our needs; it is just a constant battle to not be consumed with worry over every little thing with Joseph. So, please keep praying for us, especially all you little ones!
Wednesday, January 2, 2008
Settling In
Posted by Allen and Gillian at 8:47 PM
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78 comments:
Thanks, Gillian (Sally!) for the update--it is good to know what to pray for specifically. I will pray tonight and all day tomorrow that Joseph will just supernaturally sense the love and care that St. Jude staff has for him--praying for God's peace in his heart, even in such a scary time. I am also praying for you and Allen, for the Lord to continue to carry you and cover you with his love. May you all sleep well tonight.
Alison Fontenot
Franklin
We will be praying for you tomorrow and we pray for you so often (we're friends of Jason and Ashley Smith).
Kingsolver family
Hi Gillian and Allen, just to let you know we are still thinking and praying for you and that there are many more who you don't hear from on the blog who are also praying especially your friends and relatives in Ireland
When our kids were little, they loved for us to give them a "telling story", which we made up on the spot...one of our fondest memories of tucking them in!!! I pray God would indeed stretch your imaginations and enlarge your vision of Who HE is!! I pray for rest for you and Allen and endurance for Joseph. Special love to "Guido" (aka Nana)!!
Love,
Paula Wilson
I like your new name, Gillian! Praying for the peace which transcends all understanding.
Sally & Wes
Thanks for the update, it sounds as if you all have adjusted to your new home, dogs and all.(I'm sure Millie and Laney are loving the attention!) I'd also love to hear the stories you, Allen, and Nana have made up. I bet they are great!! You are English majors!!!
I am constantly thinking of all of you and wondering how things are going. I will be praying and asking our Father to prepare Joseph, you, and Allen for tomorrow's full day at St. Jude. I will also pray that God will prepare the staff that will be working with Joseph; that He will use them to minister His love and that Joseph will respond to their requests.
I pray that you will rest tonight and that tomorrow you will see God's love in everyone you come in contact with at St. Jude.
"The Sovereign Lord is my strength; he makes my feet like the feet of a deer, he enables me to go on the heights."
Habakkuk 3:19
Love, hugs, and kisses to all the "Cars", Mimi
I am praying right now that Joseph will have a good day at St. Jude's tomorrow. I pray the Lord will give him the patience to endure all the testing, the strength needed, and that he'll be able to withstand it all with minimal discomfort. Our hearts ache for all of you, and we will continue to lift you all up in prayer.
Romans 8:25 says "But if we hope for what we do
not yet have, we wait patiently for it".
Romans 15:13 (NLT)
So I pray that God, who gives you hope, will keep you
happy and full of peace as you believe in Him. May you
overflow with hope through the power of the Holy
Spirit.
Hebrews 11:1
What is faith? It is the confident assurance that what
we hope for is going to happen. It is the evidence of
things we cannot yet see.
We sincerely HOPE AND PRAY Joseph will be healed.
Love, Lisa Allen
Dear Gillian and Allen,
I am so thankful that surgery went well and that the Lord made the tumor a different color than the brain tissue! Praise the Lord!
I will be praying for Joseph that the God of Peace would be with him and that he would provide His peace and give him rest. I will also be praying for you and all of the family that the Lord would refresh you and renew your spirits daily. I pray that He would provide you with manna, to give you exactly what you need when you need it. We love you and your family deeply.
Stacey Perry
We are still praying and thinking of you many times each and every day!! Sounds like things are going pretty well with your new home in Memphis. Thanks so much for letting us know how you are by your blog entries. Much love from us all to you all, Karl, Martha, Ashley and Adam
Dearest Gill and Allen,
I love your new names! I am praying for tomorrow and that Joseph would feel God's peace all throughout the day. I am also praying for supernatural strength for both of you. I can't wait to tell Joseph some stories when I see him. I love you both tons.
Goodnight, sleep well
Lots and lots of love,
Lynn
So glad to get an update and to know how to pray in prep for all the appointments tomorrow. You all are constantly on our minds and hearts and in our prayers. Allison just got home from visiting a friend in NY and she saw your XMAS picture on our refrigerator and was shocked- we still haven't sent out our cards and they don't even include a picture! Just a small way that you amaze us as you walk this unbelievably difficult path. Love to all! And by the way, I feel really old- I don't know any of the characters from Cars! Praying for you before I go to bed! Love, Mel
Gillian,
We'll pray for all of your specific needs! I have to laugh on the stories. Since Matthew gets hooked on one book at a time, I'm learning to be very creative, too. I've modernized all of the old nursery rhymes. Our playgroup friends are very prominent in them also. I've also learned that Matthew and Sarah love my accents, but Chris thinks they are so bad he leaves the room. (pretty much same for singing!). My favorite personal adaptation is reading Maisy Drives the Bus in an English accent and explaining the elephant has to get off the bus bc he is too fat from eating junk food and not playing outside and Little Black Cat needs to wake up and get off at Stop #5 because Maisy is exhausted at the end of the day and really wants to go home and have a glass of wine and read the paper. :)
Another funny- we have great video of Matthew C-mas morning getting chocolate candy in his stocking. He says "whoa, treats" (pause) "these are for when I go poopy on the potty!"
Look for us on America's Funniest Videos...
Love and Prayers, Margaret
I found your blog from Boothe Farley's site. I have a three year old little boy myself who loves Thomas the Train & Lightning McQueen. I can't imagine how difficult this is right now. Please know that my family is praying for you & your precious boy. Your strength is amazing!
We prayed for you last night before bed and will continue to do so today!!
May God allow His Spirit to comfort Joseph today and give him the strength to go through all the days testing!! We are very thankful to Jehovah Jirah for His provision during this time.
My wife and I, as parents, also lift you two up and ask God Himself to comfort you both!!
We love your family!!
Greg, Janna, Shannon(13), Jake(10) & Josh(7) from Bolivar TN
Great to hear that Joseph is doing so well. Our thoughts are with you all today for his day at St. Judes. Coincidentally St. Genevieve's feast day, she is the patron saint of Paris, is today and she it is said miraculously stopped a pestilence in the 1100s when a relic of hers was brought through the streets. Not a bad day to start his time at St. Judes!! Love always, Susan and Brian
It sounds to me like you're going to have to take our dogs back to ATL with you...they're probably getting more attention now than they have over the past year! Thank you for caring for them, but please let us know if it's too much.
I'll be praying for our Joe P throughout the day. I was so excited when Pauline told me yesterday about his train ride! I pray that his strength continues to improve, physically and mentally (and the same for you guys). Let me know if you guys need anything today while you're at SJ.
love,
uncle matt b
So glad to hear how well the 2nd surgery went and that Joe P. is recovering well from it. We will be praying for patience and strength for you today.
I was also impressed with your ability to get Christmas cards out the door on time during all of this! ;)
We miss you guys.
Love,
Tony & Lizzi
It is so good to come here this morning and see your update. I know this is all in Gods hands and He is directing each and every movement. I am so happy to hear that Josephs recovery from surgery is better than the last one. And it sure sounds like he prefers you guys personally over the TV. This is so good. I continue to pray for this sweet little man that this time of healing will be gentle and complete for him, and for his spirit to be protected as he encounters all of the treatments and therapy. Praying for your hearts to be protected as you see his reactions to fearful situations, knowing that this is being done to save his life. God is so good and will be with you every step of the way. May God cover you all with His Love.
Love, Laurie in Ca.
Praying for Joseph today and all the testing, as well as for you guys to have the supernatural strength you requested. We loved the Christmas card from you guys and have it up on our fridge as a reminder to pray for you all! Much love to you all from Orlando!
We are still praying for you all and will pray specifically for all the tests and for Joseph to be brave and calm. Our two year old reminds us literally every night to pray for Joseph. Praying for "streams in the desert" Is. 43 as well.
Nathaniel, Rebekah, Anna Walton and Olivia
Dear Gillian, Allen, Joseph, and Holly,
This is Antonia (Wright) Cobble, Lynn's friend from college. I have been following your blog and praying for sweet Joseph for awhile now (linked from the Farley's). However, I had no idea that this was YOU, Gillian!!! I had even looked at the pictures and not recognized you! Your hair is so long! Anyway, another college friend emailed me and told me about your blog and who you were and I was shocked. I have gone back and read every single post again from the perspective of knowing who all of you are and praying for you throughout the day and night. We too have a 3 year old little boy and I am praying for you every time I hold him and rock him. Thank you for sharing the story of God's faithfulness to you as he carries you through this on this blog. What a blessing and testimony you are!
Love,
Antonia
(antoniacobble@gmail.com)
Hi, Gillian:
You and your family are in my prayers and in my heart! I am so happy to hear that Joseph's second surgery went so smoothly, and I pray that today will not be too hard on him.
Lorraine (at the theology library)
Sounds like your Christmas picture is on refrigerators all over the U.S.! Thanks so much for taking time to update the blog. I call Grandaddy often to give him updates. Thank you God for happy and content moments for Joseph. Our prayers are with you today.
love,
Norma
Thanks for the details. It does my heart well to picture Joseph playing and getting to act his age a little. I pray that he was more calm today with all the appointments, and that he will be open to the intervention by all the therapists. I am so glad Holly has taken to the dogs. Please know I think of you guys several times a day. My heart is very heavy for you during this time. Please know you four are very loved.!
KJ and I prayed for Joe P today that things would be really nice! I finished praying and she said "more Mommy" - so then we prayed some more for Joseph.
Claire just got her "fangs" in today - before the 2 front teeth and it made me think of Holly so much (I can't believe she is about to be 2!)
Missing ya'll!
Love - Gwen
thanks Gilly for upadating. I hope the day is going ok with all the testing and that they could do most of it.
praying for sleep, strength, comfort for Joe P, and ability to play like a little boy.
Thanks for being such amazing parents.
sj
p.s. who are the Farleys and how do they get the word out so much???
go Farleys!
thanks Gillian for updating and I will be praying for your specific needs. I am glad to hear you settling in and enjoying some family time. You two are amazing parents. Lots of love, Jody
Adeline continues to pray for Joseph! I can only imagine how God so keenly listens to the prayers of all the little 3,4 and 5 year olds praying for Joseph!
I second Matt in saying that if the dogs become too much - they will be flashed away in an instant. I'm glad Holly is enjoying them. They need some loving as Laney's tail whacks WK in the head and makes her cry, making our contact limited...
Hope today is going smoothly. Praying out here in G'town.
I'm coming by tomorrow but will stay very shortly as WK is sick.
Gill - did you get the message I sent on facebook?
Allen - check your voicemail
And when I say the dogs will be flashed away, I mean taken somewhere else. Dad might think we were giving them away if I didn't clarify!
It's so good to hear from you guys!! We will be praying today and everyday....
Logan misses his best friend and is praying for Joseph on his knees before getting into bed. Our little prayer warrior =)
Miss you lots
Love,
BJ, Beth, Logan and DISNEY!!
ps. the other #1 dog in the world
gill it was greating talking to you a few days ago. dont forget i'm here if you need me. my prayers were with you all day and i hope things went well. i know joe is in good hands.
love, céire
901-275-4829
Gillian, thank you. You are such a blessing to all of us! Thank you for your updates I check often and it means a great deal to get to pray with you all and for you all.
I came across this passage and it encouraged me as I hope it will you as you prepare for tomorrow.
John 16:33
"I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the world."
Take heart!
Emmanuel- Christ with us!
xxxooo
Anna- another mama friend
Hi Gillian & Allen, Just spoke to Pauline on the phone. I wish I could be there for you even if only for a couple of hours to give you a well deserved rest. Distance is such a huge barrier. You're in our thoughts every day. We love you. You must be so proud of your little son accepting all the tests that have to be done. I'm amazed at your strength and hope you can keep it up. love from all in Holland
Adeline said the sweetest prayer for "little Joffus" before bed tonight. It just made me smile!
We pray every day, and our little prays every day as well for Joseph.
We pray for healing hands.
love you all
Emily Miller
Allen, Gillian, and family,
Thinking of you all tonight. Had not read the blog in a few days, so I hope today, at St. Jude, went well. I continue to pray for peace, strength, courage, and perseverance for all !! Especially, for Joe P.. I will pray for rest tonight for you all. I'll pray against fear for all of you especially Joe P. Our Father is faithful, merciful, and full of grace. I know he will continue to sustain you, and I believe he will perform miracles in the coming days. All of our love to you all !!
The Partains in Franklin
I'm so glad that you all are settling in. Hannah prayed tonight that God would take away the boo-boo in Joseph's head and throw it away. I thought that was a good prayer.
courtney
Dear Gill, I hope everything went well yesterday. As ann said distance is such a huge barrier, and I would give anything to live around the corner from you at this time. Hope Lighting is feeling good today. Love Chloe XXXXXXXX
we are praying... for the Holy Spirit to annoint your time at the hospital, running tests, etc. that joseph would be supernaturally able to endure what even some adults would find trying. please know the Lord stirs you to mind often, often, and that we have not forgotten that, despite the storms at bay for now, there is trepidation surely in your hearts. sellers continues to pray for a "a piece" of joseph every night.
with love,
conor and boothe
We are so glad things are looking up for you guys. You all remain in our prayers daily. Please let us know of any specific needs you may have, and we will be more than happy to help out in any way since we are just an hour away. Much love to you all--
Mark, Ellen, Becca, and Ben
The Davis family in Washington, DC continues to think about sweet Joe P and pray for health and rest for ALL of you. What fabulous family and friends you have, Gillian and Allen. Hang in there, Joe P.! May our God who can do ALL things heal you soon.
dearest Gilla--
thanks for taking the time to direct our prayers today. I have been thinking about you and Allen as you are surely weary beyond description. I remember when I was caring for mom and would easily be overwhelmed by a sense of hoplessness and exaustion. It appears that you are battling these feelings well. I am lift your emotional state up to the Father often, asking him to bring to your mind the way he cares for the birds--
Mt. 2:25-27"Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more important than food, and the body more important than clothes? Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? Who of you by worrying can add a single hour to his life?"
love you and so amazed at the way you are persevering!
love-
sara b
Hey, That's great news about how well Joe is doing. I will be praying for you all as you walk through the daily events that you will face. " YOu therefore, Gill and Allen, be strong in the grace that is in Christ Jesus."
We love you all so much! Heather
praying for you and joe all the time and giving praises for small victories!
Continued prayers.
Vivi, the girls, and I are with you all in daily prayer. Thanks for being you! -John
Gillian-
I have prayed for you guys all day. It seems like God brought you to mind constantly...I prayed Joe would sleep in late so he wouldn't be hungry (I know, fat chance) and that everything would go smoothly and somehow you would get some really good news today. I was just reflecting tonight on the day I spent with you in the hospital- the day of Joseph's first surgery. It seems like time literally stopped and heaven and earth collided. I can't even explain it to anyone who wasn't there. I know SJ and I talked on the way home, as did Lynn and I, and it seemed like our souls were in such agony for you that we couldn't even re-enter reality. We continue to agonize with you. I kept thinking about how the Truths of God's Word seem so distant until you are faced with absolute crises of life and suddenly the reality of His Word and the very person of Christ are all that matter. We've experienced that frequently in recent years. A verse I have clung to since Chip died and what happened with my dad has been this: "I will give you the treasures of darkness, riches stored in secret places, so that you may know that I am the Lord, the God of Isreal, who summons you by name."
Isaiah 45.3
Sometimes the treasures of God come in the darkest times of life and all we have to do is simply sit in the quietness with God and "be". I love you so much and I pray for you so often. Oh, to be back to those days when all that mattered was raising support to spend a summer in Colorado or sitting in the grass smoking cigars!
-Ashley
Dear lightning, Sheriff, Mac and Sally,
Guido(Nana) here. It was great to spend time with you over the past few days! Mater(sam) had fun too! For those of you who don't know, Guido, Lightning and Mac ventured on a top-secret pantry invasion while Sheriff and Sally (Allen and Gill) grabbed a dinner date! Guido raided all of sheriff's favorite food (Doritos) for Lightning, because he was a little low on fuel (we wont mention the other goodies we enjoyed; it was top-secret!). We all (secretly) stayed up very late. I miss you all very much, and look forward to our next pit-stop.
much love to all our friends at the cone motel!
-nana
I hope you were able to find pockets of peace today! We're continuing to pray for you guys.
Kate
Hi Gill and Allen,
Thinking of you all the time. I hope today has been a good day. Hope you and Allen are recovering from your top secret raid on the pantry!
Love you tons,
Lynn
Hi Sally,
Just wanted to let you know Anna will not drink out of any cup but the one that your Dad got made for us that has Anna and Joseph on it kissing. Who would have ever thought that that cup would have turned into one of our most treasured reminders to pray for Joseph. I feel I need to get one made for all of you bloggers(prayer warriors).
Thanks so much for keeping us updated. I look everyday!!!
Praying,
Susan Babcock
Hi Sheriff, Sally, Lightening Mac Queen and Mac this is Grandad sitting here with Guido (nanna)and waiting for my car name!!
Miss you Joe P.
dear all animated vehicles,
i hope things are going well dwon in radiator springs. You all are in our prayers.
David (also waiting for a car name)
Love you all and we're all still praying in Bangkok.
We're all still thinking of you over here,
love,
Catherine, Barry, Sean & Arun xxx
Just thinking of you all.
Nate and Tony (age 16 months) will continue to pray for their friend Joseph with their Mommy and Daddy every night!!! I am happy to hear that things seem to be going better.
Randi
Dear Allen and Gillian,
It is hard for me to post comments on these kinds of things for all the world to read but I am getting over myself, finally, and going for it. We, too, like all the throngs of people who love you and are praying for you, are standing in the gap with you. We have been praying for you and little Joseph since the day we first heard. Kimberly has been broken-hearted for Joseph and has said a couple times that it is not fair and she does not understand it and she would seriously take his place if she could (those were her actual words). May the God of all strength, mercy, and power uphold you each and every moment of this trial that I cannot even begin to comprehend. Much love, Debbie and all the Gygers
Praying that Joe & co. sleeps tonight. The garbage trucks are obscenely loud on Monday mornings so get ready...
JennyPb
Praying for you tonight to get lots of rest. He is working even while we sleep. May the Lord continue to be your comfort and strength. A very present Help in time of trouble.
Good morning Gillian,
For some reason I feel particularly worried for you this morning. I hope things are okay. Sending you extra prayers of strength and patience today.
Love, Margaret
Praying for you today!
Gillian,
Thanks for continuing to update. You are in our thoughts often and in our prayers.
Much love and blessings,
Sharon Morginsky
Hey! This is Jordan Barr. I just wanted to say that my class and I pray for you and Joseph almost every day. I'm so happy the operation went well!
Jordan Barr
ps-there are 17 kinds in my class!:)
Hi Gillian and family,
We just found out what has been going on over the last 2 months. All our thoughts and prayers are with you and Joe- Reading this blog site has made us realise how amazing and strong you are and what a beautiful family you have.
Love and prayers from Ireland and all the Delaney family.
Holly,Storme,Jeanne,Bill and David
We continue to pray for you all...especially with Salem as we are putting her down to sleep. We are praying for your families, grandparents, aunts, uncles, cousins, etc.
We love you,
keely, josh & salem
Hi GIll and Allen oops i mean Hi sheriff and Sally and Lightening Mc Queen and Mac Guido here(nana) hoping today has been a good one.We love you tons and tons and miss you even more.It was so nice to see the message from Holly and Storme Bill Jeanne and David in ireland.I have such great memories of you and Holly as little girls in Sandycove.I always picture you walking home from school and climbing on the rocks with HOLLY. iread in the scripture to-day John 14:27" Ileave you peace;my peace Igive you.Ido not give it to you as the world does.So dont let your hearts be troubled or afraid" I pray that for you and Allen and also for all the family .lots of love and hugs Mom and Dad
Dear "Cars", I sure do miss all of you terribly. How great it was being with you and spending special alone times with Holly and Joseph. Joe P. keep reading that book, "Hand, Hand , Fingers, Thumb" and you will have it memorized by my next visit!! It was a long drive back to Franklin; I so wanted to turn around and head back to Memphis. I am praying that all of you are feeling better physically; so sorry that you all have been sick!
My class prayed for you this morning and in devotions we sang the words that were on St. Patrick's breastplate. Thought I'd send it to you for you to read and that God will use it to encourage you today. (I am sure you are glad you don't have to listen to me sing it!!!)
Christ be with me, Christ within me, Christ behind me, Christ before me,
Christ beside me, Christ to win me, Christ to comfort and restore me,
Christ beneath me, Christ above me, Christ in quiet, Christ in danger,
Christ in hearts of all that love me, Christ in mouth of friend and stranger.
Praying and holding you close in my heart, Mimi
Prayers continuing here for Josephs recovery, that it is a good one with little discomfort. I can totally understand your fears and apprehension about this sweetheart, but I pray the Lord gives you great peace in your hearts knowing He has His hands all over Joseph and you. I hope you are all feeling better.
Love and Prayers,
Laurie in Ca.
Poor Joseph! I'm glad he's getting better and trust God in this all through and through. We're praying for him a lot at school and hope for a miracle.
Sam Macaluso,
6th grade
ICS
praying for all of you... love,the rosenbaums
You all continue to be in my prayers. Sounds like Lil Joe is doing amazingly well. I will also update my home team and y'all continue to be on our prayer request list. So glad you've got a "cozy" place to stay. I was up in Atlanta for the holidays and believe me, it was cold there too! Keep up the faith and know that you all are loved.
Sharon ( Margaret's sis-in-law)
so glad to hear good news again! i know that the Lord is walking with you guys every day! hope that you are settling in well there.
Continuing to keep you all in our prayers. Hope you're having a good week and seeing God at work in Joseph.
The Bloomer Family, Orlando
Hi Gillian,
We miss you guys so much. I was at Lenox Park on Monday and thought of you guys and missed you even more! I'm praying for you all as I know so many others are. Thank you so much for keeping us all updated with the blog. I know so many people check it almost daily b/c you are so inundated in our thoughts and prayers! We love you!!
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