Well, it has been a year now since we found out Joseph had a brain tumor. It was this week last year, Thanksgiving was over and we had come home to Atlanta. All week Joseph had this strange head tilt that kind of came and went. He was always so quirky that I just attributed it to him being silly or something. I honestly was not worried one bit about it. He also had been a bit off balance, but that also didn't worry me since he was always a little clumsy. I could tell Allen was worried but was trying not to show it. He had checked his eyes to see if he had a reflex and his left eye did not blink at all when he flicked his finger in front of it. When he showed me that I became extremely worried. We took him to the pediatrician who was not sure what was going on, but referred me to an opthamologist. I was planning to bring him there on Thursday. But on Tuesday night Allen came home from work early (he was supposed to work all night at the hospital) and said his attending doctor recommended we bring Joseph in first thing the next morning for an MRI. I was pretty worried at this point, but Joseph was so happy and normal in so many other ways that I just couldn't comprehend that anything serious could be wrong.
That afternoon, before Allen went in to work, I had gone to Starbucks (something I did regularly whenever Allen was home and I needed a breather) and called my sister while I had some coffee. I was relaying to her what was going on and that we were going to take Joseph to the opthamologist. At this point I don't think we had decided to take him for an MRI. Anyway, about halfway through my conversation, a sweet lady who had been sitting beside me got up to leave. As she walked by, she dropped a little note onto the table and smiled at me. It read "I will be praying for your son." I couldn't believe it. It stunned me that I had been speaking that loudly (oops) for her to hear everything, and that what I had said prompted her to pray. This was my first inkling that something was wrong. I just felt it.
The next morning, we woke up the kids at 6:00 and headed to the E.R. While Joseph was in getting his MRI, I received a phone call from our dear friend B.J., who was calling to see if I would check in on his wife, who had recently lost her baby. I wasn't going to tell anyone we were in the hospital until we knew what was going on, but I felt like I needed to explain why I couldn't call to check on my dear friend who needed me. I think he was on his way to work, but he said, "I'm coming right over there. I know Allen is going to tell me not to, but tell him I'm coming." I realized at that point how scared I was, because I really was grateful he was coming to offer us some moral support. I had a feeling our world was about to come crumbling down and neither of us were prepared for it. I remember both Allen and I saying, "But it could be nothing; We'd hate for you to come all the way over here for no reason." But, God must have given him insight as well, because he came right over and waited with us.
When they wheeled Joseph back into our little waiting room, he was still asleep. I remember feeling like I might be sick. Then the doctor came in, who happened to be a man whose child Allen had taught when he taught 5th grade. We had house/babysat for their family when they were out of town and they had gone to our church for a while. We were so thankful to have someone we knew and trusted to give us this news. I still remember it as though I was watching someone else. The words were registering in my head; I could comprehend what he was saying--it just didn't seem real. How could there be a large mass in Joseph's head? How could it "probably be cancer"? How did they know that? I remember saying, "But, he's so little." Cancer happened to older people, not to children, not to my child. Then a few moments later I went outside to get some fresh air and cry.
Those few days, while horrific, were also such encouraging and sweet days. We could never have expected this news, but we also could never have expected the outpouring of love we received from friends and family and the community at Emory. Joseph got balloons and stickers, toys, treats, McDonald's, Moe's, cars, trains, all his favorite things. I still remember when all the aunts and uncles and grandparents showed up at his hospital room that he probably felt like he was the most special child in the world. Everyone was there to see him and love him and make sure he had everything he needed. We are so thankful for all the many, many people who served us and loved us and supported us during that critical week (and the ensuing months).
I recently read an article about a family in Ireland who lost their son to a brain tumor. They had no indication that he was seriously ill. They thought he had gotten a stomach bug, and after a few days of him not getting better they took him into the hospital. He went into a coma that day and died from the tumor that had grown so big without their knowledge. After reading that article, I realized how that could have been our story. If Allen had not noticed the serious issues with Joseph and if the doctors at Emory had not taken him seriously and gotten us in there quickly, we could have bounced around from opthamologist to neurologist before anyone thought it might be a brain tumor. There are so many people I have met at St. Jude's who said it took them months to figure out their child had cancer. I think in our case we wouldn't have had months and it would have been too late. So, I'm so thankful the Lord gave us 9 more months with him and that we got to see him grow up some more, really enjoy life and really enjoy spending time with grandparents and cousins and our family that loved him so much.
So, this Thanksgiving I'm thankful for my family I have here with me. I'm thankful for the four wonderful years of life I got to spend with Joseph and all the wonderful and special memories we have with him. I'm also thankful for the many ways God supported us and provided for us throughout this journey. I can honestly say I'm not scared of much anymore. Well, I guess I don't fear things as much because I feel like if we can get through this, then we can probably get through other things. To say I miss him just doesn't cover it. But his life has influenced me and Allen and Holly, and our family will always include Joseph. He is always on our minds and in our conversation and we regularly quote "Josephisms." Holly still imitates him and wants to be like him. I hope that never changes.
I'm still processing everything that has happened. One thing I'm learning, though, is that it really is best to be thankful for what you have. It can always go away. I could be bitter and angry that I don't have Joseph anymore, but what would that do for anyone? I have Holly, a wonderful husband, a sweet new doggy, an absolutely amazing family, and the sweetest friends in the world. I really am blessed. I think we all are in different ways. We just don't always recognize it.
Monday, November 24, 2008
This week last year
Posted by Allen and Gillian at 7:35 PM 51 comments
Sunday, November 9, 2008
What We've Been Up To
This is Halloween. We had a really sweet flower costume for her but all she wanted to wear were Joseph's Thomas pajamas. Last year Joseph was Spiderman (in pajamas) so I think she may have wanted to be like him. She looked adorable either way and people still gave her candy even if they weren't too impressed with the costume. :) Here is a picture from last year's Halloween. You can see the similarities:
Posted by Allen and Gillian at 9:17 PM 29 comments
Tuesday, November 4, 2008
Big Success!
Kate Etue made these delicious, creative pies--for Obama and McCain
This handsome guy stopped by to set up and break down tables and man the table.
Special thanks to Katy, Amanda, and Em'ly, who mailed goodies from afar. Thanks Mom, Kathy, Jennifer, Katie, and Kellie for helping with organizing and finding a location. And special thanks to Ruthie, Penny, Katie, Jennifer, and my hubby for manning the table and providing moral support. We had so many people stop by and were really shocked at how much we were able to raise for childhood cancer research. Thank you to everyone who contributed in any way, whether it was baking or coming by to get some goodies. I really had a lot of fun doing this. The organization, Cookies For Kids Cancer, was hoping to have 50 bake sales in 50 states on election day, so we were able to provide the Tennessee one. I hope that all of us raised lots of money to help with research for childhood cancer. I think I can request that our funds go directly to brain tumor research, which would be awesome!
It was a really amazing day. God gave us a perfect day, sunny and warm (I even got sunburned in November), and a beautiful location in Westhaven. We got to meet lots of people and be a part of the fun of election day, too.
Posted by Allen and Gillian at 7:45 PM 24 comments
Monday, October 27, 2008
Bake Sale
We have a location for our bake sale!! It will be in Westhaven neighborhood in Franklin on election day, Tuesday November 4th. We will be there from 10-2 and possibly at 5:00 again if we still have goodies. Holly and I had fun shopping in Michaels for some fun boxes and baggies for goodies (and we might have left with some candy corn and birthday candles that weren't necessarily on the list). Holly has been slightly fixated on her birthday, which is still several months away, and we have daily conversations on what the theme will be and what we will eat, etc. So, the birthday candles were for her birthday cake that I won't be making until, oh, February. And come to think of it, I think we also have princess plates that we bought in August, also for her birthday.
We have been having a nice few weeks with lots of visitors. Our friends Margaret and Matthew and Sarah came in for a visit from Atlanta; cousin Will was here, then Deacon; then this last weekend all my family came in town to celebrate my Dad's sixtieth birthday. As Sam put it, we are all thankful for sixty years of Billy Taaffe. I think Joseph inherited my Dad's passion for life and love of people, two things that made Joseph so special. We love you, Daddo!
We have been doing okay...this month last year is etched in my memory because it was the month before everything starting falling apart. I can still remember taking the kids to a pumpkin farm with the Slotkins, our playgroup Halloween party, the nursing home to trick or treat, and just enjoying the fall weather. We have some great pictures and great memories, but it makes this season bittersweet. I guess this is the first "holiday" we will have without him, the first of several in the next few months.
The first time we took Joseph trick-or-treating (he had just turned 2), we started out walking through a neighborhood in a little parade with lots of other children and parents. When the parade finished he thought that was it. But when we starting going up to doors and getting candy, his face had that blissfully shocked look and he could not believe people were just giving him candy. He started racing from door to door. It is the fastest we had ever seen him move. At first, he thought he had to eat each piece as he received it, but we finally got him to put it in his pumpkin and save it for later. The next day, he woke up and wanted to do it again that night. He didn't understand why we couldn't just do this every day. I had fun imagining all of us dressing up and walking around saying "trick or treat!" on a random night in November. I think people might have had pity on us and given us some leftover candy, right?
So, we are still missing him and thinking about him a lot. Last week I was having a really hard week and I realized how powerless I am to make myself feel better or even do the things that usually make me feel better (spending time with God, reading, etc.). I started thinking about how God wants us to come to Him as we are, with all of our pain and hurts, not as we think we ought to be. That is my biggest struggle. I really want to come to God and say "Look, aren't you proud of me?" But I have been feeling so un-proud of myself and just down in the dumps that I really can't do that anyway. So, I am trying to invite God into my pain and painful thoughts. If I start to go down a road that I know will end in me sobbing, I just ask God to redeem this sobbing. To take my tears and somehow make them beautiful or healing. I know that sorrow is not wrong, but I have a feeling that if God is not redeeming it it can easily become bitterness or resentfulness, which I really don't want. It even helps in thinking about some of the more painful times, like in the hospital after surgeries and thinking about times when Joseph just wasn't feeling well. I have been asking God to travel back with me in those thoughts and not let them become a source of guilt or depression. So, if you think of it, please join me in praying that.
I hope you all are getting to enjoy some of this fall weather. There is something so cheerful about a pumpkin. We have two big pumpkins on our front porch and every time I drive up and see them I just smile (thanks, Nana!). Happy Fall, everyone. Drink lots of cocoa and don't forget to come by our bake sale for some yummy desserts next Tuesday.
Posted by Allen and Gillian at 8:49 PM 27 comments
Wednesday, October 15, 2008
Normal Life
I have to confess something to you. I'm a little more uncomfortable with this blog now because all we have to write about is how we are doing, not about how Joseph is doing. It was originally set up to update family and friends on Joseph's condition, but it became a place to write to friends and receive encouragement and support. This blog became our best friend, in a very odd way. But now that Joseph is gone I don't have the comfort of writing about how he is doing, what we are doing together, upcoming appointments, etc. Life seems very bland now, like anything that is going on is not worthy of writing on the blog about. Life is back to "normal," but a very strange normal. It became normal to have to administer medicine several times a day, to be constantly on the alert, to have doctors' appointments schedule more often than we enjoyed. And we felt we were living on borrowed time so every day was a great celebration that we had another day with Joe. Now our normal is still not normal, because we now have only one child in our house, we are all of a sudden in a new city (which somehow I didn't process until now), and we had sorta gotten used to the other crazy normal.
Every day I sort of expect things to be different--like maybe today I won't be as sad, maybe this was all a bad dream and he will come back and things can go back to normal, maybe it won't feel so empty and wrong everywhere I go. Joseph was so much a part of me--he formed me as a mother, and he was always a part of my conversation with others, a part of what made our family "our family." Now it just feels like we are waiting. Hoping that something sudden and happy and exciting will happen, something to make this sadness and awful grief go away. I know it will be with me for a long time, but I feel like I should be acting like a normal person and I should be able to go to the grocery store without tearing up when I see his favorite juice boxes or the toy aisle where we desperately searched for "choo choos." I have this crazy urge to tell random people that I have a son and he died and I'm not just a normal person having a normal day.
I've never experienced missing someone this much, either. Allen and I took a week-long vacation right before he started residency and the grandparents graciously watched Holly and Joseph. It seemed like a great idea, but by the end of the week I missed them so much it hurt. It just didn't seem right to be away from them and I couldn't truly enjoy the trip b/c I wished we had brought them or had made the trip a little shorter or something. It was a wonderful time with hubbie but I think that trip made me realize how much a part of me the children were. It wasn't as easy to "check out" and just leave them behind as I had thought. Anyway, this feeling feels like that times a thousand. All of the knowing that he is in heaven and in a better place doesn't make this feeling go away. It's definitely a comfort and I am thankful he is in the best and happiest place he could be, but like I said earlier I just want to be with him and be his mommy again.
I read this verse today and it reminded me that God can do the impossible:
"and provide for those who grieve in Zion—
to bestow on them a crown of beauty
instead of ashes,
the oil of gladness
instead of mourning,
and a garment of praise
instead of a spirit of despair.
They will be called oaks of righteousness,
a planting of the LORD
for the display of his splendor."
I am praying that God would make this a reality in our lives and that we wouldn't let the sadness and grief overwhelm us completely. Thanks so much for your faithfulness in caring for our family and for praying for us throughout this whole journey.
Also, THANK YOU to everyone who has emailed me to offer baked goods for the bake sale. I am totally overwhelmed with all the people who have responded with such enthusiasm. I even have two kind women who are shipping goodies from across the country! And our friends over at Veggie Tales are contributing some DVDs of "The Ballad of Little Joe" (which was made a few years ago and is about facing hardship). Still working on a location but will post that once we have it...
Posted by Allen and Gillian at 11:06 PM 52 comments
Monday, October 13, 2008
Cookies for Kids with Cancer
I have always loved bake sales. From the time I was a wee one, just the sight of a pretty table filled with all kinds of sweet sugary goodness set my heart a-flutter. In fact, one of the only pictures we have of me as a toddler (I am the third of five children--need I explain?) is one where I am standing in front a table of goodies (at a wedding, maybe?) with my finger reaching for some icing or treat.
So, when I was asked if I'd be interested in hosting a bake sale for "cookies for kids cancer" I was very eager to help out. Not only will we be raising money to support childhood cancer research, but we will all get to enjoy a treat on election day. So, the bake sale will be on November 4, election day, and the location is yet to be determined. Here is the website where you can read some really interesting statistics and learn more about this great organization:
http://www.cookiesforkidscancer.org
I'm going to need some help filling our table with cakes, pies, cupcakes, cookies, muffins, and Joseph's absolute favorite--brownies!!, so if anyone out there would like to bake something to contribute to the sale, please email me. I'm very excited about this, and I know Joseph would be too. I think he and I were tied on how much we liked sweets.
Once we know where we are going to be able to have the bake sale, I'd like to invite all of you to come by and sample some goodies while we participate in electing our new president.
On a much sadder note, there is another little boy who has been battling a brain tumor for just over two years. He is such a sweet, brave boy named Aidan, and he will likely be going home to meet his Savior and play with Joseph in the next week or so. We are really saddened by this as we have grown to love him as we've kept up with his blog. Please pray for his family or sign their guestbook to let them know you care: http://www.whynotaidan.com/
All of your notes and comments were so encouraging to us in those final days with Joseph and I know they would appreciate an encouraging note. Thank you!
Posted by Allen and Gillian at 9:52 PM 11 comments
Tuesday, October 7, 2008
A good trip






Posted by Allen and Gillian at 3:23 PM 31 comments
Friday, September 26, 2008
Off to the beach
Well, tomorrow we embark on our first family trip without Joseph. On one hand we are really excited and thankful we are able to go the beautiful beach and relax and have a change of scenery, but I am also fearful that everywhere we go will remind me of him and that it will just be sad being there. We have taken him there since he was 3 months old and we have many happy memories and favorite places we shared with him. I know it won't feel right going to the playground without him, walking past the fountain at the village without him splashing in it, riding in the tram without his indescribable glee. There is just no way around this sadness. I wish we could avoid it, push it away, not let it consume us, but it's just sad. That is all there is to it.
She recently graduated from her crib to a "big girl bed" which she was beyond excited about. It's hard for me to believe that her next birthday will be number 3. She has always been the baby, but I have to get used to the fact that she is now the oldest and she is getting bigger. In fact, she is so big she has decided to ask God for her own baby to keep in her house (a pink baby--meaning a girl). She is really into playing baby dolls and has been for a long time, so I think she now thinks she's ready for the real thing. She is really nurturing and loves to take care of everyone, so I have no doubt that she will one day be an amazing mommy. But, here are some pictures of her reveling in her big girlness:
"I am way too cool for my little crib!"
"Ta-Da!! Wild Flowers!"
On the wild animal front, we have not seen any more snakes but we did have a skunk visit our air conditioning duct, so we now have a permanent skunk smell in our house. We haven't been using the air conditioning at all and have candles burning most of the time, so now the smell is tolerable. Always an adventure 'round these parts. We also have a squirrel and a cat that roam around our house, often peering in our windows forlornly. I'll let you know if they do anything exciting.
We are really looking forward to our vacation. Please pray that we would have a safe and fun trip and that God would give us peace and strength and comfort as we miss our little Joe P. God has been so good to us throughout this journey and we are so grateful for all the love and support so many of you have shown us. Thank you for being such great friends to us. We love you!
Posted by Allen and Gillian at 10:36 PM 38 comments
Saturday, September 20, 2008
Victory in Death
"This website has shown me there is a lot of goodness in this world."
An anonymous person wrote this comment on our blog the other day. Remember, this blog is the story of a child who battled brain cancer for 9 months, only to die the day after his fourth birthday. And this person sees that there is a lot of goodness in this world from reading about this? How can that be?
"Where, O death, is your victory? Where, O death, is your sting?" The sting of death is sin, and the power of sin is the law. But thanks be to God! He gives us the victory through our Lord Jesus Christ." (1 Cor. 15: 55-57)
With God, everything is backwards. The reason is because of Jesus' death and his victory through death. We tend to think of death as the end, the final failure, the ultimate evil especially in a child's life. I know when Jesus died, his faithful followers couldn't believe it. THIS was the Messiah, the man who was supposed to save them and use His power to rescue them. But he died a gruesome death on a cross like any murderer or thief and left us. There was no miraculous rescue. He didn't call down fire from heaven to destroy his persecutors. What kind of victory is that? If that had been the end of the story, it would have been a bit disappointing. But the victory comes in on the third day. He came back. He was alive. He conquered death so that it wouldn't conquer us.
A friend of mine shared this quote with me from a book entitled My God and My All by Elizabeth Gandse:
"It is never the beginning of the story to say a child is born, nor is it the end to say a man has died, for long preparation leads up to every birth, and a death leaves behind it a power for good or evil that works on in the world for longer than the span of life from which it grew."
I think of Jesus' death and the impact it has had on the world the last 2000 years or so. We now have this incredible power for good because of his death and his Holy Spirit that he left in his stead. We would not have his Holy Spirit if he hadn't left us. We wouldn't have power over sin, fellowship with God and intimacy with Him, and the assurance of ultimate pardon. No one can take those privileges away because they are sealed with the blood of Jesus. There is also unbelievable evil, but we now have hope that this is not the end of the story. Jesus can redeem it, and he will redeem it, and he is redeeming it. (And he uses us to redeem it!)
One of the reasons we named Joseph "Joseph" was because of the Old Testament character (see Genesis 37-50). He is an amazing role model (not all O.T. "heroes" are) because of his response to suffering and injustice. His brothers basically kidnapped him and sold him into slavery and lied to their father, saying he was eaten by a wild beast. Years later, after a lot of suffering and more injustice, Joseph is given great power and authority by pharaoh because of his ability to interpret dreams. There is a great famine in the land and his brothers come to him (not knowing it is Joseph) to get some food. After some more lies from his brothers and the death of his father, his brothers are worried that they have finally put Joseph's patience to the limit. His response to them is just amazing:
But Joseph said to them, "Don't be afraid. Am I in the place of God? You intended to harm me, but God intended it for good to accomplish what is now being done, the saving of many lives."
He could see through his own pain and suffering and separation from loved ones to the truth that it was God who put him where he was to work a greater good than his own happiness. Such amazing humility and trust in God!
I remember thinking what a gift it would be to have a child who grew to be a man of this kind of character. It turns out our Joseph didn't live to be a man. But in his short life I believe he showed many people the goodness of God and the goodness we are all capable of because of Jesus. The name Joseph means "the Lord will increase," and I just pray and hope that our Joseph's death will leave behind him an incredible power for good that will increase God's family and the number of people who trust in Him.
Posted by Allen and Gillian at 9:09 AM 27 comments
Thursday, September 18, 2008
Snakes and other shenanigans
The newest member of our family
My hero
Apparently, snake-handling has now been added to my rapidly expanding repertoire as a mom. So, I was performing the glamorous and much sought-after task of unloading the dishwasher, keenly concentrating on matching the appropriate sippy cup lid to its proper cup. Feeling the satisfying exhilaration of completing this task, I then move on to picking up random toys that end up on the kitchen floor---today it was a toy snake. The tiny thought crossed my mind that we haven't played with many toy snakes lately as they were usually more Joseph's cup of tea than Holly's, but I reach to pick it up anyway. This is where the excitement begins. It doesn't FEEL like a toy snake. In fact, it doesn't really look like the fluorescent green toy snake we own. I quickly toss it back on the ground, hoping I'm being paranoid, then watch it slither over to my cabinet to try to hide, as I proceed to scream, hyperventilate, scream, fly into the next room to hide in a corner, scream.
Posted by Allen and Gillian at 2:49 PM 33 comments
