MRI Tomorrow

Over the past two weeks and since the whole pseudoprogression thing, we have noticed that Joseph has started his head tilt again. It was gradual and we denied it as long as we could, but it is definitely back. This was the first sign that something was wrong way back in November. Over the past few days his walking has become increasingly unsteady. This is obviously very concerning for us.

They told us that even if this truly is psuedoprogression we may see some symptoms, but they appear to be increasing daily. After talking with his doctors at St. Jude, we are hopefully going to have an MRI tomorrow (Wednesday) here at Vanderbilt. The images will be sent to Memphis and they will compare it with the previous ones. Hopefully this will help us find out what's going on. Best case senario is that the spot is still the same size and shape and that his symptoms are due to whatever necrosis and stuff makes up the spot. Worst case is that the spot really is a progression and that it is growing bigger. If that is the case, then we will stop the Tarceva and start on a new chemo regimen. We think he'll start CPT-11 and Avastin, but we're not totally sure yet. He will also probably restart steroids regardless. We have no idea if another surgery would even be an option.

This is a very difficult time for us. Seeing him like this reminds us of the terrible days back in November. Please be praying for him and for us. We really appreciate it.



UPDATE:
Okay, now the plan is to get a CT scan here to see if there is any increased intracranial pressure. They will not be able to tell whether this is progression or not. We will be going to St. Judes on Sunday for an MRI and PET scan Monday and Tuesday which will be able to tell what's going on. So we won't find anything out until next week.
Please pray that Joe will take his medicine easily without much fight and that he will have great patience and endurance for the battery of tests that await. Thanks.